A Grandmother’s story: What you need to know about cystic fibrosis

On September 6, 2011, I was introduced to a beautiful new grandson named Owin. All outside appearances indicated that he was a healthy, handsome little man, and I remember being simultaneously thrilled, thankful and a bit taken aback by the new addition to our family.

What made me a little uneasy was his mom, Karee, matter-of-factly saying that “We would know for sure how healthy Owin was when the doctors completed their newborn testing.”

A few days later, Karee called our house to talk to her mom, Karen. “Mom,” she said (you could tell she was fighting back tears). “We got some news back from the doctor. Owin has cystic fibrosis.”

I remember looking at Karen with kind of a blank stare, not having any idea what cystic fibrosis was. This was my first introduction to the disease is as it hit home right in our own family.

Three years later, we had our next introduction to cystic fibrosis. It came in the beauty of a little girl, whose name is Rori. Rori is Owin’s sister.

From the moment Rori was born, I knew she was full of spunk. Unfortunately, we received the same kind of call as we had with Owin. A few days after her birth, we learned that Rori also has cystic fibrosis.

My grandchildren have undergone a lot over the years to keep their health in check. Along the way, I’ve developed a passion for educating others about the disease. My family and I are also doing what we can to help find a cure for this very difficult disease.

What is cystic fibrosis?

Cystic fibrosis is a genetic disease that comes from both parents, as each parent must carry at least one copy of the defective gene in order for a child to be born with the disease.

Each time two cystic fibrosis carriers have a child, the chances of the child contracting some form of cystic fibrosis are:

  • 25 percent that the child will have the disease
  • 50 percent that the child will be a carrier but will not have the disease
  • 25 percent that the child will not be a carrier and will not have the disease

Any abnormality in the cystic fibrosis gene is called a mutation. Currently, there are about 1,700 known gene mutations that can cause cystic fibrosis. Most testing for the disease only screens for common disease mutations. More than 30,000 people in the United States today live with cystic fibrosis, and more than half of those people are older than age 18. Approximately 1,000 new cases of cystic fibrosis are diagnosed each year.

Why is cystic fibrosis so difficult to treat?

Cystic fibrosis brings with it many different battles. According to the Cystic Fibrosis Foundation, It is a genetic disease that affects the lungs, pancreas and many other parts of the body. A buildup of mucus in a patient’s lungs clogs up airways, making it very difficult to breathe. This sticky mucus also traps bacteria and makes the person very susceptible to lung infections, lung damage and respiratory failure.

In the pancreas, the clogged mucus prevents the body from releasing enzymes used for digestion to break down food and absorb vital nutrients.

What are the symptoms?

Symptoms of cystic fibrosis include (but are not limited to):

  • Very salty tasting skin
  • Persistent cough
  • Frequent lung infections like pneumonia or bronchitis
  • Wheezing
  • Shortness of breath
  • Stunted growth
  • Poor weight gain regardless of appetite
  • Difficulty with bowel movements
  • Male infertility

What does a day with cystic fibrosis look like?

Each day, Owin and Rori take many different medications. The last time I was at their house, the top of their dishwasher was covered with pill bottles and boxes of medications, including pancreatic enzyme supplements to improve the absorption of nutrients into the body.

Along with these medications, the children also must work to keep their airways open with several breathing treatments and other therapies each day. Daily nebulizer treatments supply antibiotics to help them fight lung infections.

Both children have learned to do other things – such as playing a game or watching TV – while getting their breathing treatments.

Comparing the amount of medications that these children take every day to the three I take every other day sure makes my medication regimen seem like nothing to me.

Normal, active and energetic in every way

One of the many struggles that Owin and Rori’s parents, Karee and Zack, have every day is being sure that both children have enough salt in their diet. Children with cystic fibrosis have a higher concentration of salt in their sweat and need to replace any salt that is lost. Often, their water must include added salt to make up for the salt that is lost.

Rori and Owin Pelis with their parents Zack Pelis and Karee Perry

In spite of all this, Owin and Rori are two of the most normal, active and energetic children I’ve ever known. Now ages 7 and 4, Owin is in 2nd grade, and Rori is not in school yet. Owin has played soccer on a team at his local soccer facility. Both children love hiking, swimming and having picnics with family and friends.

Here’s why I support the Cystic Fibrosis Foundation

I hope this explanation of cystic fibrosis has helped show what the disease is all about and what people who live with it every day of their lives go through.

Because it’s so close to me and my family, we all have become very involved in supporting and raising funds for The Central New York Chapter – Syracuse Office of the Cystic Fibrosis Foundation.

Fundraising in Central New York for cystic fibrosis is a win-win situation, because the money raised in Central New York goes directly to the CNY Chapter of the Cystic Fibrosis Foundation. In other words, it stays here to benefit the people for whom we directly raised it.

For our family and for others who support the Cystic Fibrosis Foundation, we made a commitment to never stop fundraising and working toward a cure until “CF stands for CURE FOUND.” In a world where so much uncertainty exists, that’s something you can count on.

The Cystic Fibrosis Foundation is there and will be there for families like ours that have been affected by this disease.

If you’d like more information regarding cystic fibrosis, visit cff.org/CentralNY, cff.org, or search cystic fibrosis on nih.gov.

CF stands for CURE FOUND!!!!!!!!!!!!!

Will you join me? New York City at 3 mph

Growing up on Long Island and then while attending college in New York City, I had the opportunity to enjoy many of the things that make the “Big Apple” an endlessly interesting and special place.

But it was not until several years ago that I was made aware of the opportunity to experience Manhattan in two very challenging and unique ways.

In a few months, I’ll again experience Manhattan in this very unique way. I’d love for you to join me. But first, read on.

Experience Manhattan by bike

Several years ago, my brother and I joined about 4,000 other cyclists and rode our bicycles in the New York City Bike MS event to raise funds for the many individuals (including our Dad) who struggle with multiple sclerosis.

The first year we participated, we rode about 30 miles on closed roads around the perimeter of Manhattan. The following year, a friend joined us, and we took an extended, 45-mile ride on (mostly) closed roads that included the ride around Manhattan and a ride through the Lincoln Tunnel to New Jersey and then back into Manhattan via the George Washington Bridge.

Experience Manhattan on foot

A few years ago, my mother-in-law made me aware of a chance to experience Manhattan in yet another unique way, through a Shorewalkers event known as “The Great Saunter.” Held the first Saturday in May, it’s a one-day, 32-mile walk around the perimeter of Manhattan.

The majority of the walk is along the Manhattan waterfront, including the Hudson and East Rivers, and traverses more than 20 parks. It begins and ends in Battery Park at the southernmost tip of the island.

On my first Great Saunter experience in 2015, one of my good friends from college and I joined 1,500 other walkers who set out early in the morning. Although my friend and I did not complete the entire walk, we did cover more than 25 miles! By late afternoon/early evening, more than half of the original group had completed the course.

It is amazing how different Manhattan looks and feels “from the edges,” rather than being immersed in the glass and steel canyons of the usual street grid. Highlights of the walk include stunning views of the Statue of Liberty and the New Jersey, Queens and Brooklyn waterfronts.

We walked under several bridges, including the Brooklyn, Manhattan and Williamsburg Bridges.  At the northern tip of Manhattan, we ate lunch at the base of the Little Red Lighthouse in Fort Washington Park, and we later passed through almost 200 acres of the beautifully wooded (and quiet!) Inwood Hill Park. At that point, it was difficult to believe that we were still in Manhattan!

Armed with an excellent map of the Great Saunter route, we were guided along the way by Shorewalkers volunteers, who also provided snacks, drinks and plenty of encouragement.

Preparing for The Great Saunter

If you’re anything like me, you won’t be able to undertake a 32-mile walk on the spur of the moment. To prepare for the Great Saunter, I added several long (six- to seven-hour) walks in the Syracuse area to my usual, regular daily walks. My favorite places to go for the longer walks are Green Lakes State Park, Onondaga Lake Park, and during those cold winter months, Destiny USA mall. If you visit Destiny USA during the pandemic, please follow their healthy shopper guidelines.

My challenge for 2019:  Walk AND bike Manhattan

I may have to do a little more training for my trip to New York this year. I recently learned of the annual Five Boro Bike Tour, a one-day, 40-mile ride that begins and ends in Staten Island on the first Sunday of May (the day after the Great Saunter).

As the name suggests, this event is a ride through all five of the New York City boroughs (also on closed roads), including a trip on the Staten Island Ferry and a ride over the Verrazzano Narrows Bridge. Each year, more than 30,000 people from around the world participate in the Five Boro Bike Tour.

So this year, I’ve made it my personal challenge to spend the first weekend in May in New York, walking in the Great Saunter on Saturday, May 4, and then riding in the Five Boro Bike Tour the following day, May 5.

Anyone care to join me? If so, please respond in the comments section below.

11 Easy Snacks to Help You Sleep Better

Almost everyone loves to grab a snack before they go to sleep. But what you choose to eat could determine whether or not you fall asleep right away.

Before you begin nighttime noshing, ask yourself:

  • What’s your motivation?
  • Are you bored? Stuffing emotions? Munching while watching TV?
  • Or, are you really hungry, and if so, how hungry?

If you’re eating just to eat – or to cure boredom or make you feel better – you might want to think twice before indulging.

But if you’re really running on empty, opt for snacks that won’t add extra pounds or result in a restless night.

Large portions and high fat foods (like French fries) interfere with falling asleep. Spicy foods slow down digestion. Alcohol may make you feel drowsy and have a relaxing effect at first, then cause you to wake up because it interferes with deep sleep and interrupts the sleep cycle. The stimulant powers of caffeine, found in coffee, tea or chocolate, take several hours to wear off. Even decaf has some caffeine. High-sugar foods and overeating can also interfere with your ability to sleep.

Not all bedtime snacks are bad for you. Some can help you take in more nutrients that you still need for the day. Going to bed hungry can actually keep you awake.

If you’re considering a bed time snack, try incorporating foods that help boost your levels of serotonin, the calming and “feel good” hormone. You could consider:

  1. Nuts, including walnuts, almonds, cashews and pistachios
  2. Seeds, such as flax seeds, pumpkin seeds and sunflower seeds
  3. Lean protein, such as chicken, fish and low-fat cheese

Choose a small snack with protein and carbohydrates – these types of foods either contain or help create an amino acid called tryptophan that can cause sleepiness.

Try these protein and carbohydrate combinations:

  1. Whole-grain cereal with low-fat milk
  2. Peanut butter on whole-grain toast
  3. Low-fat cheese with whole-grain crackers
  4. One ounce of turkey or chicken on a slice of whole grain bread

Other snack options could include:

  1. Bananas and other foods high in potassium, which helps you to stay asleep

Foods high in calcium also contain certain sleep-causing hormones, such as tryptophan and melatonin. So don’t feel bad if you grab a snack that consists of:

  1. A container of low-fat yogurt
  2. A cup of low-fat milk
  3. A slice of low-fat cheese, such as mozzarella.

Good snacking and good night!

For more advice on what to eat at night, go to:
sleep.org
health.clevelandclinic.org
sleepassociation.org
sleepfoundation.org

A Daughter’s Story: My Dad’s Life After A Heart Attack

When your 58-year-old dad drops to the floor and dies of a heart attack in a hospital emergency room, you take notice.

The event that triggered this wake-up call for Meghan Dailey of Rochester occurred seven years ago. She talks about it as if it just happened yesterday. It’s that fresh and real in her memory.

The heart attack: the scariest hour and a half of my life

The day started out pretty ordinary as typical workdays go. Meghan was working at Excellus BlueCross BlueShield in downtown Rochester. It was mid-October. It was one of those early fall days, when you just start noticing that the weather is getting a little cold.

What interrupted this otherwise unremarkable day was a call from her mom. She said that her father was in the emergency room at Unity Hospital in Greece. He had suffered a heart attack and collapsed right there in the ER. His heart had stopped beating. Doctors were trying to resuscitate him with chest compressions and the jarring shocks of an automated external defibrillator.

Meghan and her two sisters rushed to the hospital in time to witness their father’s revival. He was immediately wheeled in for surgery. The doctors inserted two stents to open up the clogged arteries in his heart.

“It was awful,” recalled Meghan. “Probably the scariest hour and a half of my life.”

He didn’t think he was having a heart attack

They sat in the waiting room with another group that was expecting word on their loved one. Meghan and her family never stopped praying even as they waited anxiously.

A doctor came in to tell the other group that their loved one hadn’t made it. Dailey thought their family’s turn would be next.

“Thankfully, our Dad made it through the surgery,” she said. “He was in the intensive care unit for another week and then was able to go home to recuperate.”

Meghan Dailey with her dad.

What’s not so unusual about this story is that Mike Schuth, Meghan’s dad, didn’t think he was having a heart attack. He thought the five- or six-hour pain he’d had in his shoulder was indigestion. According to his daughter, Mike decided to go to the emergency room only because he thought that’s where his doctor would send him.

Ever since Meghan could remember, she knew that her dad had high blood pressure. “Heart disease runs in the family,” she said. “My grandpa died of a series of heart attacks.”

The chef finds healthier ways to eat

Acknowledging that her father knew he should be careful with his health, Meghan is quick to point out that her father works as a chef.

On the job at Salmon Creek Country Club in Spencerport, he never thought twice about adding a little extra butter, heavy cream and Parmesan cheese to his fettucini dishes, or some additional salt to flavor his house specialty – steak with mashed potatoes.

“His favorite foods used to be linguini with white clam sauce, fish fries and macaroni salads,” said Meghan. Following the heart attack, his talent as a chef helped him find ways to modify the recipes he uses for himself and his family.

He’s learned to make more heart-healthy dishes without unnecessarily sacrificing quality and flavor. Scroll down to see his recipe for a lighter version of Alfredo sauce. Please add your heart-healthy recipes in the comments section below.

After a heart attack: walking, medication and golf

He watches what he eats and favors more fresh vegetables over foods like French fries But Mike also adheres to the medication regimen prescribed by his physicians to control his high blood pressure and high cholesterol.

He also started walking more. During winters spent in Fort Myers, Florida, Mike walks every day and golfs three times a week. Back home in Brockport, Meghan’s dad maintains the same routine.

Mike’s efforts at watching what he eats have paid off in spades. He lost 40 pounds in twelve months.

Being around for his grandchildren

Over the last couple of years, Meghan’s dad has gained added incentives to remain healthy. His three daughters have given him five grandchildren between them.

“There’s no doubt that he wants to make sure he’ll be around for his grandchildren,” said Meghan. “The kids adore him, and he loves being around them.” Her own two children range in age from 15 months to 3 years.

Since their father’s heart attack, the family recognizes the prevalent role that heart disease plays for them and keeps extra vigilant. “My sisters and I try to teach our children that veggies are an integral part of every meal,” said Meghan.

“We also try to maintain an active lifestyle and incorporate activities in everything we do,” she added. That comes in the form encouraging her daughter to pursue gymnastics, or to go outside to get some fresh air and play.

American Heart Association Rochester Heart Walk

One activity that the whole family, including grandpa and grandma, is actively involved in is the American Heart Association’s Rochester Heart Walk.

Meghan served as co-chair with Marty Cranmer, IT project manager, of the Excellus BlueCross BlueShield Rochester teams that participated in the walk. This year, the event was held in April at Frontier Field. Meghan and her family were there, supporting an event that raises money for what she feels is the best cause. With around 60 members on the Excellus BlueCross BlueShield team, the group raised close to $6,000 for the cause.

“I support the American Heart Association because my Dad and I are really close.” she said. “I’m so lucky that he’s still alive, and I feel blessed that he is.”

Heart-Healthy Recipe

Here is Mike Schuth’s recipe for heart-healthy Alfredo sauce.

Light Alfredo Sauce

¼ cup butter
1 clove garlic, minced
2 cups skim milk
1 package low-fat cream cheese
1 cup grated Parmesan cheese
Black pepper to taste

Melt butter in a saucepan over medium heat.

Add cream cheese and garlic to butter, whisking until melted.

Add milk, a little at a time, while whisking to smooth out lumps.

Stir in Parmesan cheese and pepper until smooth.

 

The Meaning Behind the Teal Pumpkin: Help for Children with Allergies on Halloween

Some of my favorite memories as a kid are from Halloween. I remember dressing up as a witch to go trick-or-treating with friends while hoarding  all of the peanut butter cups and refusing to listen to my parents when they told me to wear a jacket (Hey Mom and Dad – you were right about needing a jacket. Upstate New York gets pretty cold by the end of October). Thanks to food allergies, not every child is able to create those same memories. One in 13 children has a food allergy and Halloween can be one of the most frustrating and dangerous times of the year for them. But a teal pumpkin is trying to change all that.

The author dressed as witch, ca. 1998. Provided by Christine Leavenworth

The author dressed as witch, ca. 1998. Credit: Christine Leavenworth

The Teal Pumpkin Project

The Teal Pumpkin Project encourages people to provide non-food items for trick-or-treaters so that kids with food allergies can participate without facing risks to their health.  Some of the treats that are handed out include glow sticks, rubber balls, vampire fangs, etc.

Paint a pumpkin teal, put it on your front step the night of Halloween, and kids with allergies will know that your home is safe to visit.

A teal pumpkin indicates a house that is giving out allergy-safe items to children with allergies on Halloween. Credit: Christine Leavenworth

A teal pumpkin indicates a house that is giving out allergy-safe items to children with allergies on Halloween. Credit: Christine Leavenworth

Food Allergy Research & Education (FARE) started this international campaign in 2014 to “create a safer, happier Halloween for all kids.” It began as a local activity by the Food Allergy Community of East Tennessee that has morphed into an international awareness event.

“One bite of the wrong candy by these kids could cause life-threatening allergic reactions,” said LouAnne Giangreco, Vice President and Chief Medical Officer of Healthcare Improvement at Excellus BlueCross BlueShield. “We’re thrilled that our communities are rallying around these kids so that they can also indulge in special ‘treats’ and have fun, just like everyone else.”

A parent of children with food allergies is grateful for the Teal Pumpkin Project

Colleen Garofalo of Madison County is a mom to two kids who have food allergies. Her daughter is allergic to peanuts and her son is allergic to shellfish and tree nuts. Garofalo heard about the Teal Pumpkin Project from one of FARE’s email newsletters.

“As a parent, the Teal Pumpkin Project means inclusion,” said Garofalo. “There are so many times during school or birthday parties when my kids have to be careful about what they eat. They might feel left out if they can’t have something the other kids can have. The teal pumpkins allow them to have another option.”

Children with food allergies are now able to participate in Halloween thanks to the Teal Pumpkin Project.

Olivia and Anthony Garofalo are ready for an allergy-free Halloween. Credit: Colleen Garofalo

When Garofalo’s kids go trick-or-treating, they still collect all of the candy. But when they get home, they go through the candy to ensure that it’s safe to eat. She’s spotted a few teal pumpkins in her neighborhood, but hopes to see more as the word gets out about the campaign.

“The smaller candy that is handed out at Halloween doesn’t typically list the ingredients,” she said. “If I’m not familiar with the candy, it either gets thrown away or I have to research it to see if it’s OK for my kids to eat.”

“I’ve called manufacturers before to ask if a product that doesn’t contain peanuts is made on the same line as another product that does,” she added. “Then I have to ask about the cleaning process for the machines as well.”

Join the Teal Pumpkin campaign

Some of the most common allergens for children are nuts, milk, wheat, egg and soy. Many candies contain at least one of those ingredients.

If you would like to take part in the Teal Pumpkin Project and offer a non-candy treat to trick or treaters, you can either buy a teal pumpkin or paint your own.

Wegmans Food Markets, Inc., for example, sells paint specifically for the Teal Pumpkin Project. The paint can be found in the seasonal section, near the pumpkin carving kits, and a portion of the proceeds benefit FARE.

Teal pumpkin paint is available at local grocery stores, including Wegmans in Rochester. Provided by Joy Auch

Teal pumpkin paint is available at local grocery stores. Credit: Christine Leavenworth

“We are so happy to be able to support this initiative,” said Wegmans Nutritionist Trish Kazacos, RDN. “It’s a simple approach that allows children with food allergies to safely enjoy the holiday with their family and friends.”

Once you have your teal pumpkin, place it in front of your house to let trick-or-treaters know that you have non-food items available. FARE also provides free printable signs to explain the meaning behind the teal pumpkin and a list of ideas to give out to trick-or-treaters.

Supporting the Teal Pumpkin Project and handing out non-food treats doesn’t mean that you have to give up the Halloween tradition of giving out candy. You can hand out candy and allergy-safe items and then let the kids choose which one they’d like.

If you’ll be putting out a teal pumpkin this Halloween, be sure to add your address to the crowd-sourced fever map and let your local community know that you are participating.

12 Ways to Reduce Holiday Stress

The first house in my neighborhood ablaze with holiday lights triggered a mini anxiety attack.

Lights glowed in the windows and decked out neatly trimmed bushes. Decorative reindeer nuzzled their noses in the lawn, as if enjoying a grassy snack.

“Oh crap,” I thought. “It’s Christmas time.”

My mind reeled through a list of To Do’s before the big day. The list felt overwhelming.

  • Decorate the house.
  • Decorate the tree. Wait – first get a tree.
  • Presents. Buy, wrap and mail them.
  • Wait – what do my kids even want? Santa list. Must get the older one to write a Santa list.
  • Christmas cards. I must tackle this one. Christmas is in a few weeks.

And the list went on – Christmas cookies, Santa visit, take the family photo for the Christmas cards, etc. Bah, humbug!

STOP! BREATHE!

We can become consumed with Christmas and other holiday tasks. Who even has time to actually enjoy what the season is really about?

To help you (and me!), Ann Griepp, M.D., chief medical officer for behavioral health, Excellus BlueCross BlueShield, shares 12 tips to get you through this holiday season.

  1. Got too much to do? One way to handle the stress is to wake up a few minutes earlier than you usually do. Take a few moments for yourself:  light a candle, drink your coffee, reflect on the day and count your blessings before you have to get going.
  2. Decide what can go. Talk to your family. Dr. Griepp had this discussion with her family one year. As a result, they decided to skip the Christmas cards. There’s nothing wrong with skipping the mailed cards and instead sharing holiday messages through email or Facebook.
  3. Keep doing the activities you love. If making Grandma’s peanut brittle is a must, then by all means do it!
  4. Save time. Some people LOVE to decorate. Others view it as a chore. If you fall in the latter category… stop decorating so much! Sometimes less is more.
  5. Give money or gift cards instead of hunting for individual gifts – particularly if you know the recipient likes to pick out their own gifts. That’s another way to skip the stress.
  6. Lead a healthy lifestyle to help reduce stress levels! Eat healthy and stay active. – (Tips for adding more vegetables to your meals). You’re busy, but you should still make time for exercise – even if it’s just a walk around the block. And don’t forget to get enough sleep!
  7. Remember to spend time with your PETS. Pets can feel whenever you are stressed or anxious. Going for a long walk with your pet will do a lot of good for yourself and your companion.
  8. Change the formula. Many of the winter holidays — Hanukkah, Christmas and Kwanzaa — have multiple days of celebration. So spread out the activities. Dr. Griepp’s parents used to celebrate the 12 days of Christmas by planning simple gatherings with friends and family. They’d skate or go sledding one day. They’d play cards, eat, or exchange small gifts the next.
  9. Anxious about money? Set a budget and stick to it. If you’re buying gifts for a lot of siblings, cousins and their significant others, consider a “Secret Santa” exchange as a way to reduce the amount of money you spend on presents. Or consider having a “white elephant” exchange—bring a wrapped present of an item you no longer want or need. And if you’re the creative type, make your own gifts. Pinterest.com is a great resource for many of my more crafty friends and family.
  10. Volunteer. What better way to get into the holiday spirit or teach your children the true meaning of this time of year than helping families in need? Volunteering might also boost your mood and reduce stress.
  11. Take a break and watch a favorite holiday movie with your family–Rudolph the Red Nosed Reindeer, Miracle on 34th Street, It’s a Wonderful Life, Christmas Vacation or A Christmas Story, to name a few.
  12. My personal favorite? Ask for help! Maybe the grandparents could take the kids to see Santa while you shop for presents (or go for that walk)? Don’t feel like you have to tackle all of the tasks yourself. Ask your significant other or the kids to take responsibility for some of these tasks. Realize that you can’t do it all alone and you’ll feel better in the end!

 

Lori’s story: How I lost more than 250 pounds

Lori Dyer had struggled with her weight for as long as she could remember. She was 412 pounds and had tried every diet. However, she always gained the weight back.

She got sick a lot and struggled to walk down stairs. The extra weight contributed to health issues, including high blood pressure, sleep apnea, pre-diabetes, back pain and knee pain.

“I didn’t know how not to be fat,” she said.

It wasn’t until Lori’s children said they “didn’t want to lose her” that Lori went through with a procedure that has so far has helped her lose more than 250 pounds.

(Click below to watch a video by Highland Hospital that highlights Lori’s story)

Gastric Bypass

Lori underwent gastric bypass surgery.

With the surgery, the doctor first makes the stomach smaller by stapling off a small pouch, which makes you feel full sooner. Next, the surgeon shortens your small intestine and attaches it to the small stomach pouch. This changes the direction of the food to bypass most of the small intestine so your body absorbs fewer calories.

When doctors look into bariatric surgery, they look at many options, including gastric sleeve surgery.

After gastric bypass surgery, patients need to rest and recover. After the operation, most people move from a liquid diet for a week, to a puree diet, to a soft diet where you can introduce other foods, to a balanced diet set out by a dietitian. These special diets run about two months before you are back to “normal” food.

Bariatric surgery is not a magic pill.

Lori said the surgery changed her life. But after undergoing such an intense procedure, Lori had to dramatically change a lot of things. She has to regularly take vitamins and supplements, eat healthy practically all the time, attend follow-up appointments, exercise and participate in support groups for the remainder of her life.

Lori says, “It is hard,” but her only regret is, “not having the procedure done sooner.”

Lori had at one point accepted where she was. She was 400 pounds and didn’t want to leave her house. Lori said her decision was hard to make.

“When I had thought about surgery in the past, I didn’t want to do it because I always figured I would be missing out on so much,” she said. “But then the light bulb finally went off and I thought ‘what am I missing out on by NOT having the surgery?'”

Lori realized that the answer was life. “When talking it over with my kids, my daughter said, ‘We really want you around as long as possible.’ So yes… absolutely. I was going for it.”

Considering Bariatric Surgery

Bariatric surgery is a major procedure, and should be part of a comprehensive program that includes exercise and nutritional education as well as mental health and well-being, said says LouAnne Giangreco, M.D., a Chief Medical Officer at Excellus BlueCross BlueShield.

If you are considering bariatric surgery, make sure you understand the side effects like infection, diarrhea, blood clots and even death.

“This type of surgery is only recommended if you’re very obese, your health is suffering and if all other diet and exercise options are not successful,” she said.

“Regularly eating healthy and exercising can have a bigger impact on your health than you think,” she added. “But, make sure you get the social support you need; having friends and family that support you is just as important as going through with the procedure.”

You may be able to look to your employer for support. According to Pat Salzer, a registered dietitian at Excellus BCBS, many workplaces provide health education programs at the work site.

“I am no longer just existing…I am living”

Lori wants people to know that bariatric surgery is not “cheating or the easy way out.” She stresses that “this is one of the hardest things I have ever done.” Lori found Highland Hospital in Rochester, a Blue Distinction Center for Bariatric Surgery. Hospital staff took care of her, educating her about the procedure and providing care before, during and after the surgery. These Blue Distinction centers help patients like Lori get back on their feet usually with fewer complications and hospital readmissions.

Lori has done things she never thought possible and is comfortable trying new things. Lori even went on a dating site last year and “found the piece of me that was missing. I totally would have missed out on him because I would have never put myself out there.”

Lori and Fred Shaughnessy

“Be ready for your life to change dramatically.”

Now, Lori is living her life the way she always wanted to. She is kayaking, mountain climbing, running 5ks and walking out the door, ready to take on her next adventure.  Lori stresses that the procedure “has certainly made, a huge, huge difference. It will affect everything you do, but in a good way.”

Lori with her kids, Mitchell and Rebecca

Lori’s Three Year Journey:

5 Tips for Cutting Soda from Your Diet

You drink over 38 gallons of soda each year.

According to the Center for Science in the Public Interest (CSPI), that’s how much the average American drinks each year, which is equivalent to eight 12-ounce cans of soda each week. This statistic shocked me, too.

But it also opened my eyes to my own soda-drinking habit. I typically drink at least two Mountain Dews per day and sometimes it’s more than that. After reading this statistic, I did a little more research.

The reality of soda

The CSPI reports that a typical 12-ounce can of soda contains nearly 9 teaspoons of added sugars and a typical 20-ounce bottle contains 15.5 teaspoons of added sugar. While this may not seem like a lot of sugar, it is. To put it into perspective for you, the American Heart Association recommends a maximum daily intake of 6 teaspoons20 of added sugars for women and 9 teaspoons for men. This means that an average 12-ounce can of soda puts you at or above the recommended maximum daily intake of added sugars.

I don’t know about you, but that kind of blew my mind.

I have been drinking Mountain Dew regularly since I was in middle school. It’s probably contributed to cavities, stomach aches, and weight gain. I have tried time and time again to stop drinking it, but soda has a way of holding your affections. Mountain Dew is no exception.

I decided to track down the best ways to get rid of this habit. After doing a lot of research, I have come up with five tips and tricks for cutting soda out of your diet.

1. Start slow

You don’t have to quit cold turkey. Start by drinking less each day. If you usually drink two sodas a day, start by drinking only one.  The next week, try one soda every other day. And so on.

2. Set yourself up for success

If you don’t want to drink a lot of soda, then don’t buy a lot of soda. It doesn’t help if you keep putting it in your refrigerator. Take away the temptation and only buy the amount you are planning to drink. Another tip was if you only like to drink cold soda, then only put one in the fridge for the next day.

3. Find alternatives

It helps to fill the space that you’d be drinking soda by drinking something else. Drink water. If water is too boring for you, try flavoring it with fruit. Swap in coffee or tea if you’d like some caffeine. Flavored seltzer water may also be a good option if you like something with fizz. For many people, beverages can account for almost 20 percent of total calorie intake,  so it’s important that you find healthier alternatives. Plus, if you don’t find something else to drink, it will be that much harder to resist the call of the vending machine in the break room.

4. Exercise

If you drink soda for the caffeine, then try working out or simply getting some exercise to gain more energy along with some other great benefits. It’s much healthier for your body and has zero added sugars! Here are some great tips to help you replace your soda habit with an exercise habit.

5. Track your calories

If you’re a numbers person, it might be a good idea to sit down and track how many calories you’re drinking every day. Calories can be found right on the Nutrition Facts label. If you pay attention to the amount of calories you’re drinking, then you’ll see how quickly they add up. You could also track how much exercise you need to work off all the calories you’re drinking. The numbers may just motivate you to work harder on quitting. The MyFitnessPal app can be a useful tool to help with tracking calories.

After trying out all of these tips, the most helpful to me was finding alternatives. While I’d normally drink a soda with dinner, I’ve started drinking a glass of milk. When I’m thirsty at work, I drink water. Have any of these tips been helpful for you?

Still thirsty? Check out Is Diet Soda Healthier than Regular Soda?

Myth-Busters: Common Misconceptions About Food Labels

Jamie Moore is the Director of Sourcing and Sustainability at Parkhurst Dining. Moore is passionate about teaching people about common misconceptions about the labels we find on our food. He shares his guidance and tips on what to know about food labels.

Fact vs. Fiction

Food labels are designed to help us better understand our food purchases. However, according to Moore, a government agency does not regulate all of the claims on a food label. Without regulation or strict standards, some of these labels can, therefore, be misleading, he said. Most consumers don’t know the true meaning behind many of these labels and may purchase food thinking that the label means more than it does. Here are five common food labels that may be misleading you.

1. Cage-Free

It is generally thought that “cage-free” eggs come from a hen who lived outside of a cage.  However, according to Consumer Reports’ Greener Choices, seeing a “cage-free” label on eggs does not guarantee that hens were raised outdoors or even in large open spaces. In reality, most “cage-free” egg-laying hens were raised in hen houses where each hen has a space of about 8 inches by 8 inches.

Similarly, when “cage-free” is on a meat label, it may be thought that these animals are not raised in cages, but that doesn’t mean the animals don’t live in close quarters. For example, many “cage-free” chickens are raised in large, open structures called “grow-out houses”. These houses typically hold tens of thousands of chickens, and each chicken is given less than a square foot of space (about 10.5 inches by 11 inches per chicken).

Variation exists in what “cage-free” means because the “cage-free” claim is only verified sometimes. For example, while this label on eggs is supposed to be regulated by Food and Drug Administration (FDA),  the farms are not always inspected to verify the type of “cage-free” environment that the hens have access to.

2. Pasture-raised

When you see the label “pasture-raised,” you may picture animals who spend all day living in an open field, grazing on grass. According to Consumer Reports’ Greener Choices, however, a “pasture-raised” label on meat, poultry, dairy or egg products only means that the animals were raised for at least some portion of their lives on a pasture or with some access to a pasture. For example, “pasture-raised” dairy cows are given some access to a pasture, but primarily housed indoors and raised on a diet of hay, corn, and soy, not grass.

When it comes to dairy and eggs, there is no common standard for what “pasture-raised” means. This means that producers can decide the size, quality and access standards to the pasture. When it comes to meat and poultry, producers are required to explain what “pasture-raised’ means for their products. However, the USDA allows the producers to make their own definition of what it means. Producers do not necessarily have to stick to the same standard.

3. Free-Range

Much like “pasture-raised”, “free-range” hens and chickens are generally thought to have free access to the outdoors. However,  Consumer Reports’ Greener Choices explains that there are no standard requirements for the size or condition of the outdoor area that these animals have “free-range” in. Therefore, products can be labeled “free-range” as long as birds are given some kind of access to the outdoor area. Producers don’t have to report how accessible the area is to the birds or how often they are given access.

On beef products, the “free-range” label means that the animals were given free access to the outdoors for at least 120 days each year.  Again, there are no requirements for the size of the outdoor space or the quality of its condition. Like “pasture-raised”, “free-range” also doesn’t mean that the animals only at the grass on a range.

These products are only verified sometimes by the FDA and the Food Safety and Inspection Service (FSIS).

4. Locally-Grown

“Locally-grown” is a label that is not legally regulated. That means there is not a standard definition for what “locally-grown” means.

For example, when you hear about “locally-grown” produce, you may think the produce is grown right down the road. In reality, the produce could be grown 40, 60, or even 100 miles away. Producers can define what is “locally-grown” based on their own mission and circumstances. When you see that something is “locally-grown”, ask about what is “local” to that producer or grocer to learn more about where it came from.

5. Natural

The USDA defines this label as a product containing no artificial ingredient or added color and is only minimally processed. According to Consumer Reports’ Greener Choices, this label is not verified. This means that there are no consistent standards to ensure that the label means what it implies to consumers. “Natural” is a label that companies can define for themselves and the definitions vary. Government agencies do not regulate the use of the “natural” food label, they can only provide guidance.

Organic food, on the other hand, is held to very rigorous standards. To learn more about the difference between “organic” and “natural” food labels, check out our article, What’s the Difference Between “Organic” and “Natural”?

Learn Before You Trust the Label

Moore emphasizes that many food labels can be confusing when there is a lack of regulation or standards for what a label means. That’s why it is important to learn more about the meaning behind a food label. By doing a little research or talking to experts like Moore, you too can be a more informed consumer at the grocery store.

If you’re interested in buying a product that truly has verified claims for things like having access to a pasture or being grass-fed,  Consumer Reports suggests looking for additional labels on the product. Some food labels are strictly regulated and provide meaningful standards for things like free access to the outdoors. These labels include:

 

What You Need to Know About Appendicitis

Do you know what it feels like to have appendicitis? I didn’t either.

I was attending my first year of college, living alone in a studio apartment in the big city and taking a full load of classes while working two part-time jobs to pay rent and support my cat. While I was lying on the couch watching Netflix one night, a dull pain started in my stomach. I figured it was just stress or maybe menstrual cramps. As a woman, I’m used to stomach pains because they hit me every month for at least three days. A little stomach pain is nothing.

But the pain gradually got worse, which was a little different than the norm. It made it painful to move or breathe. I grimaced as the pain escalated. I thought about going to the emergency department, but I instantly doubted myself.

What if I get there and find out that it’s just gas? That would be so embarrassing, was just one of the many doubts going through my mind.

I was a nineteen-year-old who had grown up in a no-nonsense family that believed if you’re not dying then you’re probably fine. I had never been to the emergency department and I didn’t think I was qualified to make this decision. So I spoke to three different mothers (mine, my grandma, and my best friend’s) and finally decided to go.

Once I arrived, I went through four hours of waiting in the emergency department, four different tests and a lot of medications before they diagnosed me with appendicitis.

I almost didn’t go to the Emergency Department

As a female who gets menstrual cramps once a month and has had stomach aches pretty regularly my whole life, I just assumed it was normal stomach pain that would go away. I was used to stomach pain and doubted that it could actually be something like appendicitis.

That’s why it’s so important to know the difference between everyday stomach pains that don’t require a hospital visit and something like appendicitis, which can be very dangerous.

What even is appendicitis?

According to the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), appendicitis is inflammation of your appendix. Untreated appendicitis can rupture, which can cause you to become very ill with a fever, nausea, severe tenderness in your abdomen, and vomiting.

Appendicitis can have more than one cause, and in many cases, the cause is not clear. Some possible causes are:

  • Blockage of the opening inside the appendix
  • Enlarged tissue in the wall of your appendix caused by an infection in the gastrointestinal tract or elsewhere in your body
  • Inflammatory bowel disease, stool, parasites, or growths that can clog your appendiceal lumen
  • Trauma to your abdomen

So, how do you know when the pain in your stomach is appendicitis?

There are some classic signs and symptoms of appendicitis, but it is important to know that people can present very differently with this condition. When your appendix is inflamed, it can cause a pain in your abdomen that starts near your belly button and moves lower and to the right side. The pain can come on suddenly and can gradually get worse over several hours. Something that the doctor will do is push into the right lower side of your abdomen. This will cause a pain in the area.

If you’re still unsure, there are other symptoms of appendicitis that can follow the pain. Those symptoms can include:

  • Pain that worsens if you cough, walk or make other jarring movements
  • Nausea and vomiting
  • A loss of appetite
  • A low-grade fever that may worsen as the illness progresses
  • Constipation or diarrhea
  • Abdominal bloating

There are other medical conditions that can also lead to similar symptoms. Since appendicitis can be difficult to diagnose, call your medical provider to discuss any unusual abdominal pain that you are experiencing. Your medical provider can help you to determine the next best steps in diagnosing the source of your pain.

Get treatment, even when you’re unsure

Appendicitis is a medical condition that requires timely care. A doctor can help treat appendicitis and reduce symptoms and the chance of complications. It’s better to be safe and find out it’s just gas, than to have your appendix rupture and end up in a lot more pain than before. If you have appendicitis, it is vital that you are treated. If I had listened to my doubts that it was just cramps or gas, I would have ended up very ill and spending a lot more time in the hospital.

Know the difference between your usual stomach pains and a pain that feels unusual. Trust your instincts and seek the guidance of a medical provider in getting the care that you need.